Matthew was born July 21, 2017 with a rare medical syndrome named Charge Syndrome. It can affect many different parts of the body. The diagnosis Matthew has is Hydrocephalus, Hypoparathyroidism, Cleft Lip/Palate, Bicuspid Aortic Valve, complete heating loss, underdeveloped trachea resulting in having a tracheotomy, and a g-j feeding tube due to two cases of reflux causing pneumonia.
With all of his diagnoses, the family still doesn’t have a clear picture of what Charge Syndrome means for Matthew and are hoping to raise enough money to attend the Charge Syndrome Foundation Conference in 2019.
Learn more about Matthew and Charger Syndrome.