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Matthew was born July 21, 2017 with a rare medical syndrome named Charge Syndrome.  It can affect many different parts of the body. The diagnosis Matthew has is Hydrocephalus, Hypoparathyroidism, Cleft Lip/Palate, Bicuspid Aortic Valve, complete heating loss, underdeveloped trachea resulting in having a tracheotomy, and a g-j feeding tube due to two cases of reflux causing pneumonia.

With all of his diagnoses, the family still doesn’t have a clear picture of what Charge Syndrome means for Matthew and are hoping to raise enough money to attend the Charge Syndrome Foundation Conference in 2019.

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Learn more about Matthew and Charger Syndrome.