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Archive for ‘December, 2018’

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Matthew was born July 21, 2017 with a rare medical syndrome named Charge Syndrome.  It can affect many different parts of the body. The diagnosis Matthew has is Hydrocephalus, Hypoparathyroidism, Cleft Lip/Palate, Bicuspid Aortic Valve, complete heating loss, underdeveloped trachea resulting in having a tracheotomy, and a g-j feeding tube due to two cases of reflux causing pneumonia.

With all of his diagnoses, the family still doesn’t have a clear picture of what Charge Syndrome means for Matthew and are hoping to raise enough money to attend the Charge Syndrome Foundation Conference in 2019.

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Learn more about Matthew and Charger Syndrome.

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On May 19th, Braylen was killed in an automobile accident.  Sue Calvert, his grandmother, said the following of the accident:

“This has left a hole in her heart that nothing can replace.

I ordered the bracelets in remembrance of him to show people that his memory will never leave us. He will always be a part of us just as he used to be.

A love for somebody’s gone never fades it just goes into the heart more deeper. Thank you and God Bless.”

We join with Sue in remembering and celebrating the life of such a sweet boy.

Fly high, Braylen.

Reminderband Team

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