On Friday April 26th at 9:40am a sweet little boy, Ryker Warner, earned his angel wings and went to his Heavenly Father.
Ryker Warner was born on May 7th to Jason and Rachel Warner. Diagnosed with Heterotaxy RAI (right atrial isomerism) with Asplenia and ventricular discordance at birth. It affects his heart and other organs. Ryker’s specific diagnosis is-
Heterotaxy RAI (right atrial isomerism) with Asplenia, Right Dominant AtrioVentrical Canal (AVC), Total Anomalous Pulmonary Vein Return (TAPVR), Double Outlet Right Ventricle (DORV), Left-Sided Pulmonary Vein Stinosis (PVS), & Ventricular Discordance.
At the second of many doctor appointments Jason and Rachel were given the option to terminate the pregnancy. Doctors said their baby would not have quality of life. They instantly declined the option and continued with the pregnancy knowing their lives would be changed forever.
Ryker spent most of his almost year of life in the hospital, going outside only three times. At just two weeks old Ryker underwent the first of many open heart surgeries. His family strived to make the best of this time and stay positive; Rachel’s blog filled with God and light.
Rachel often called Ryker her “miracle boy”. Here is an excerpt from one of her first blog posts, “He is such an AMAZING miracle boy & continues to inspire & teach everyone around him!”
The Warner’s will be celebrating Ryker’s life at the South Mountain Community Church (14216 Bangerter Pkwy Draper, UT 84020) Saturday May 4th at 11 AM. There will be a viewing at the same location Friday May 3rd from 6-9 PM.
They are also looking for a Videographer that would be willing to donate time for Ryker’s Celebration of Life on Saturday May 4th. They would also love to find someone willing to do a live streaming of the event for all of those unable to attend. Please contact Jen at 801-554-1170 with any suggestions.
You can read Ryker’s full story on their blog – http://miracleryker.blogspot.com/
Here is a video Rachel made of Ryker’s life.