Reminderband provided wristbands to a fundraiser for a 9-year-old boy named Benjamin Siedman. Benjamin suffers from Sanfilippo Syndrome, a rare and fatal genetic disorder that slowly erodes a person’s skills.
Recently featured on CBS 4 news, Jennifer Siedman said, “It’s like Ben is missing the garbage truck to take away the waste that his cells produce as he grows, so it’s affecting all of his abilities.”
Noah Siedman, Ben’s big brother, came up with the idea to sell the blue bracelets that read “Dream for Ben,” knowing the wristbands are a big hit with kids his age.
In his interview with CBS 4 Boston News, Noah said, “I want my brother to be normal, it would be nice to have someone who’s my age and is a boy.”
The Siedman family set up the Sanfilippo Research Foundation to help raise awareness and money to find a cure. The Reminderband bracelets help raise awareness and money for this cause.
Initially, the Siedman family was buying bracelets in quantities of 260 and they are now up to 2,000 bands.
To help support research for Sanfilippo Syndrome, please visit Ben’s website. www.bensdream.org